The representatives of the Association of Epilepsy Patients from Romania draw the attention to the "severe" shortage of essential anti-epileptic drugs endangers the life and stability of patients, especially that of children, on #PurpleDay, an internationally-recognised epilepsy awareness day, celebrated every year on March 26.
"We are sounding the alarm about the severe shortage of essential anti-epileptic drug that jeopardizes the life and stability of patients, especially that of children. The recent lack of necessary treatments increases the risk of uncontrolled seizures, severe complications and profoundly affects the quality of life of those diagnosed. We make an urgent appeal to the authorities and distributors to take immediate measures to ensure the continuity of treatment, and to the media to support this cause, informing the public about the dramatic impact of this situation on patients and their families," said Ileana Stefan, executive director of the Association of Epilepsy Patients from Romania, as quoted in a press release sent to AGERPRES released on Tuesday.
According to the specialist Andrei Daneasa, diagnostic and treatment methods have evolved significantly in this field, but patients are "constantly" confronted with the problem of access to innovative treatments, but especially with the lack of treatments on the market that have proven their effectiveness.
Ioana Mandruta, an epileptologist at the University Emergency Hospital in Bucharest, also emphasizes the importance of close collaboration between patient and doctor in the process of diagnosing epilepsy.
"The emotional challenges experienced by patients and their families are often underestimated, but they have a profound impact on the quality of life. It is essential that these families have access to appropriate resources, whether support groups, counseling or activities that allow them to express their emotions and share their experiences. Early interventions and psychological support can help both children and families to develop healthy coping strategies, improve communication and build stronger relationships in the face of adversity," says Monica Bolocan.
ASPERO will organize on Wednesday an online event - "Patients Ask, Epileptologists Answer" - which will be attended by neurologists, specialists for both adults and pediatricians.
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